The world is upside down and backwards. I am in a bubble surrounded by a haze. I don’t want to push it. Reality will seep in and take over. I am sure I will wake up and find that this is a cruel joke. You will walk by and say “Hi Sweetie Pie,” and I […]
It is three months now since he has been gone. I have cried, sometimes totally bereft, but not as often as I did before. It doesn’t mean I don’t miss him. I miss him every day, hour and minute. It just means that life goes on.
I have learned that hugs are healing and I am trying to share that message now. I do it with people I know. I share it with strangers. I will share two stories about hugs here. A few weeks ago I was purchasing a new piece of technology. When I was working with a tech […]
Today marks, by the calendar numbers, one month since he died, June 8, 2013. Last week I didn’t cry. Instead of finding solace in not crying I worried my lack of tears meant I wasn’t a good wife/partner. I worried I had cried all the tears I could. What is that saying about Crocodile Tears? […]
I stopped writing my blog about our journey to what I thought would be a healthy outcome for Bob. I look back and see that I needed all my strength to help him fight for his life. My husband left this earth on June 8, 2013, just a few months shy of our 28th year […]
The second bone marrow test for MDS is set for May 10th. We are told we just have to wait two days (until the 12th – the Friday) and we will finally get results.
I realized a while ago there was no way I could make this a daily blog. My days are full – waking in the morning with worry followed by doing the bare minimum to keep a house in order. I pay bills and feed the cat. The phone rings constantly and e-mails drop into my […]
I realize our story is not remarkable. Other people have been through similar or more lengthy and draining health ordeals. I am just sharing our journey as it happens, not knowing where it will lead us. I am also learning to work within and around a health care system that can be daunting for the […]
Day 3 cont’d.: March 22, 2013 I am tired and lying in bed, but feeling hopeful now that my husband has been admitted to hospital and has a real bed (not on an emerg gurney) and nurses to document his pain and look after him. I hear the familiar beep alerting me to a text […]
March 24, 2013 Our medical system is broken. My husband and life partner is trapped in it. So are the medical professionals who just want to help people. They didn’t sign up for this. I didn’t expect it. We aren’t strangers to the medical system. My husband has an ongoing disease he has battled for […]